An online program for carers of people with moderate to severe dementia

Are you a voluntary/unpaid carer of someone with moderate to severe dementia?
Would you like to learn about strategies for managing common behaviours?

Behavioural changes occur in 90% of people with dementia. These changes are stressful and challenging for carers. The good news is that you can learn skills and strategies for managing behaviours that other carers have found helpful!

We are recruiting for a study to evaluate two online resources (videos vs fact sheets) for carers of people with dementia.

This is a free, confidential, entirely online, 8 week program to teach carers good strategies for managing behaviours common in dementia. The study involves watching videos, completing worksheets, visiting an educational website and completing online questionnaires. You do not need a high level of computer or internet skills to complete the program and you can complete it at home in your own time. You can spend as much or as little time as necessary, we think that most carers will spend about an hour a week learning, and find that they put the learning to use most days.

More information about the study:

The purpose of this study is to investigate the value of self-guided online educational resources for carers of people with moderate to severe dementia.

To be eligible to participate in this study you must be a carer of a person with moderate to severe dementia, have at least 20 hours face to face contact with the person with dementia, be an Australian resident, 18 years of age or older, fluent in written English, and have access to the internet with an updated browser and Adobe PDF reader.
In order to participate you will need to provide a valid email address and create a password to complete questionnaires online that inquire about your demographics and questionnaires relating to the above eligibility criteria.

If you are eligible and agree to participate, you will be randomly allocated either to:
a) a group that will complete an 8 week online educational program that includes watching animated videos and completing worksheets or to
b) a group that will access an educational website for 8 weeks.

To ensure the groups are similar to start with, a computer allocates each person into a group randomly, like the flip of a coin. Both groups complete all components online and are required to answer questionnaires related to stress and coping over 8 weeks, with final follow-up questionnaires 3 months after the completion of the 8 weeks.
Participation in this study is voluntary and you can withdraw from the study at any time without having to give a reason.

Please note this is a purely online self-guided research study. We do offer online technical assistance if needed, however we are unfortunately unable to assist with clinical issues or provide advice outside of the program. If you or the person you are caring for need support please see your GP, contact the Alzheimer’s Australia Dementia Helpline on 1800 100 500, or contact Lifeline on 13 11 14.